Friday Round-Up – June 19, 2020

After a poor performance last week left me with no Friday post, and even though today’s post is much later than I intended, here I am to make good on my promise to do better.

Here is my round-up list for the week ending on June 19th:

📖Article – Jon Stewart Is Back to Weigh In | The New York Times

Sorry if you hit a paywall on this article (I managed to read it fine from Pocket). I’ve lamented elsewhere that I genuinely miss Jon Stewart, not just from his tenure on the Daily Show, but also from other initiatives he’s thrown his weight behind (remember his masterclass in oration?). While this interview is part of Stewart’s media blitz for his upcoming movie release, it is also chocked-full of wonderful insights and observations about the world we find ourselves in. He’s ever poignant in his wit, but also speaks from a cautious place. The interview is so good, I quickly reached the limit of my free highlights in Pocket.

💭 Reflection Mega-Thread – How We Process Information

I want to turn this into a more formal blog post in the near future, but for now I’d like to lay out a few strands that have come together over the last two weeks about how we process, curate, and digest information.

🎧 Listen – You Must Avoid This Weakness | The Daily Stoic Podcast

First, a short listen from the Daily Stoic reflecting on how our minds are not reliable when it comes to processing truth. Instead, we are bound up in our own biases that we seek to confirm. If we want to be functioning, contributing members of society, we must actively exercise our critical faculties, including seeking out when we are wrong. Or as the closing lines state: “It’s the snowflakes who fly into a rage when someone challenges their views. It’s the snowflakes who can never admit they’re wrong or address deserved criticism or feedback.”

🎧 Listen – 479: Post-truth Expertise | CBC Spark Podcast

Next, a thought-provoking podcast episode from the CBC that tackles expertise in a seeming post-truth world. There is a lot of good information floating around in the ether, waiting for us to latch on to its wisdom. And yet, despite good information there for us to seize, we see many people in our peer groups turn away and distrust the experts. Shunning the norms of knowledge communities, they instead embrace their own norms of knowledge and assertion.

📣 Twitter – Carl T. Bergstrom (@CT_Bergstrom)

Speaking of experts, one of the voices I’ve turned to on Twitter to help me filter the signal from the noise is Mr. Bergstrom. He has provided both some levity :

As well as valuable information to help stop me from embracing each news article that flies out with clickbait titles:

I have a blog post percolating in my mind about curating news feeds, but I’ll leave that breadcrumb here for now.

🏳‍🌈🎧 Listen – I Don’t Want To Get Over You (Season 3 Mission 9) | Zombies, Run!🏳‍🌈

Finally, I want to give a huge shout-out to the writers and folks behind Zombies, Run! for this episode I listened to last week. The episode really stuck out for me. A large portion of the dialogue involves two lesbian characters discussing a mutual love interest (the love interest is the current partner of one of the characters, and a former lover of the other character in the conversation). The conversation between the characters touches on topics like “gold stars” and the fears that bisexual partners may have, even in committed relationships. I’ve heard my own queer friends discuss these topics, and while it felt noteworthy that the development team included “voices” from a wide range of folks, it was awesome to hear conversations that weren’t centered on the heterosexual experience that’s often given as the default in media. It gives the game a sense of realness and depth, despite it being about living in a post-apocalyptic zombie wasteland. It’s also important, as we reflect on this Pride month, to think about the kinds of voices we engage with that represents life, and whether we are seeking out sources that look to bring more diversity to the table. I’m happy to be supporting the app and the team.

Stay Awesome,

Ryan

Aristotle and Moral Education in Art

silhouette of three performers on stage
Photo by Kyle Head on Unsplash

I spent a large chunk of my weekend grading essays from my students. Their task was to watch the movie The Road, adapted from the novel by Cormac McCarthy and write a paper based on themes and ideas presented in the course. Based on the course content presented so far, I encourage students to examine the story’s protagonist and argue whether he is a good candidate to be considered a tragic hero as defined by Aristotle.

While grading papers, I mused about Aristotle’s strict criteria for what makes for a tragic hero. The tragic hero must be noble and good (though not a paragon of virtue), but possesses a minor flaw of character or error in judgment (hamartia), which when applied to circumstances brings about some sort of downfall or negative consequence (an inevitable reversal of circumstances, or peripeteia). It’s not that the character is vicious, but merely that their minor flaw is the cause of the negative outcome. However, the negative outcome must be caused by the character (and not, for instance, by the gods), and the consequences of outcome must be in excess of the original cause. The character must also see that they are the reason for their suffering (anagnorisis – the move from ignorance to knowledge). In the context of a narrative or telling of the story, this would elicit pity and fear, a purification of emotions (catharsis) for the audience.

On the one hand, Aristotle is spelling this all out as a way of formalizing and categorizing types of art (Aristotle was a philosopher and biologist by vocation). He might have even considered writing this down as a way of formalizing a set of guidelines to critique plays, finding a way to point out what makes some plays good and others not.

But I had another thought. Aristotle’s teacher, Plato, took a dim view of the arts. In his Republic, Plato was comfortable with banishing the poets from his ideal city, and only allow art that held up the moral authority. I’m wondering if Aristotle had something like this in mind – that art could be used as a moral education tool.

Maybe, the best examples of art are ones that teach the audience lessons, albeit in a less direct route (than, say, fables). If this were true, then we could interpret Aristotle’s criteria the following way. A piece of art is valuable as a moral training tool when the audience can build an emotional connection with the suffering of others. Rather than it being a spectacle for them to lose themselves in, the art gives the audience a moral framework to judge themselves against. The tragic figure is like them: not a god or immortal, but an example of a good person trying to do good things. The tragic figure might even be a little aspirational, something the audience can work towards. They aren’t depraved in the soul, but they are responsible for their actions, even if those actions have negative consequences.

Instead of blaming their suffering on an external cause, the tragic figure realizes that they are the cause of their own suffering. The audience sees this, sees that they could be this person, and through their emotional connection, learns to empathize with the tragic figure. In a sense, they could be the same person, were the circumstances be different. The audience feels the pain, takes pity upon the otherwise good person, and maybe even fears this happening to them.

Given that Aristotle’s ethics was predicated on relative moral excellence, it’s possible that he intended art to be educative, though I don’t have the scholarship background to confirm whether this is true (or plausible). To be clear, I don’t think art must function in this capacity. I think it’s perfectly reasonable to have art for its own sake, or for the creative expression of what’s inside the artist.

Still, the thought of morally educative art is interesting. I’ve often thought of what kinds of art I’d want to expose my own children to in the development of their moral character. What kinds of lesson would I want them to absorb and learn from as they develop an internal sense of ethics and morality?

Stay Awesome,

Ryan

Reflection: T1J – On Riots

My Monday post this week is late. Instead of trying to cobble something together, I will share this video from T1J’s YouTube channel published last week. It gave me a lot to think about.

“Now these stories are very complex and nuanced, and American schools generally do a bad job of teaching Black history. But the point I’m making is, it’s not true that Martin Luther King Jr. did some peaceful protests and gave some speeches and then single-handedly changed everyone’s minds. The progress we’ve seen is due to the combined efforts of Black leaders and activists throughout history, some of whom disagreed on the best path forward, but all of whom contributed towards shaping the world and making the world a little better for people of color. Another thing people fail to realize is that Martin Luther King Jr. was very unpopular during his time. So, whether or not something is palatable to the white masses is not a good measure of whether it is the right thing to do.”

“On Riots” 7:24-8:07

Stay Awesome,

Ryan

Friday Round-up – May 29, 2020

This was a pretty bad week for me consuming content. Between some big stuff happening at work, and a general feeling of blah-ness, I don’t have a lot to share this week.

Here is a round-up list for the week ending on May 29th:

📽 Video – Comedy News: Is It Deep or Dumb? | Wisecrack

I think this video does a good job to interrogate my love of certain kinds of comedic news. I was a late-convert to Jon Stewart, and felt crushed when he announced his (much deserved) retirement. While I’ll admit I haven’t given Trevor Noah a fair shake, I pretty much stopped watching the Daily Show after the change-over. Similarly, I’ve watched other shows that riff on the format, whether on cable (such as Samantha Bee), subscription services (like Hasan Minhaj), or online content (I get John Oliver through YouTube). It’s not lost on me that all of the names listed above are Daily Show alumni. My consumption also includes shows that are inspired by the presentation format, like Some More News on YouTube. Still, it’s rare that I consistently follow any one show because I tend to find the material or subjects to be somewhat hollow. The only exceptions to this, as noted by Wisecrack, are Oliver’s and Minhaj’s shows, which I feel to be both smart and wise in the material they present. Rather than trying to punch for the sake of cracking jokes, their shows punch at topics that are meant to help people that aren’t in on the joke. That is, their shows aren’t just speaking to the in-crowd as a private way of mocking the out-group. This was a great video essay that made me think.

📽 Video/Reading Group – Hannah Ardent Reading Group on “The Origins of Totalitarianism” | YouTube & Hannah Ardent Centre for Politics and Humanities at Bard College

I purchased Hannah Ardent’s The Origins of Totalitarianism as a birthday present for myself a few years ago (I know, I’m weird). I still haven’t cracked into it as of writing, but last week I received an email update from my alma mater, and in it they discussed how one of the faculty members had recently returned from time spent doing research at the Hannah Ardent Centre for Politics and Humanities at Bard College. The email also described the regular reading group that occurs, and how it recently moved online to promote physical distancing. I checked out their YouTube page and found this series that I hope to carve out some time to follow along with. Origins is a pretty hefty book, and Ardent is a pretty powerful thinker, so I’m glad to have a resource to help me understand the nuances of her work better.

Stay Awesome,

Ryan

Leadership Lessons – Individual Rights vs Expediency

Star Trek: The Next Generation – Season 3 Episode 7 “The Enemy”

As with many other people right now, I have chosen to go back and re-watch favourite television shows. I decided that with Star Trek: Picard’s recent release, it would be a great time to go back to the beginning (of the modern era, anyway) and revisit Star Trek: The Next Generation. I had probably watched every episode in my teen years, but I had always watched it in syndication, so this is my first time going through the show in order.

Approaching the series in my 30’s has been a real treat. I have more life and cultural experience to draw upon as I watch these incredibly written episodes play out. I knew the show was amazing, but I never appreciated how well it engages with moral issues.

I want to highlight one excellent episode from the third season – episode 7, “The Enemy.” The characters provide us with a moral issue about autonomy, and a good lesson in leadership.

The story centres on the conflict that arises when the protagonists rescue an enemy officer from an out of bounds planet. The officer, from a race of people called Romulans, is gravely wounded and requires a blood transfusion. There is only one member of the crew whose blood could be usable, but that crew member, Worf, has a history with the enemy’s peoples – Worf’s parents had been killed during a Romulan attack when he was a child. Worf, still carrying his anger for their death all these years, refuses to give his blood.

Meanwhile, a Romulan ship is en route to recover the officer. There is a tenuous peace treaty that prevents an all out war, but the Romulans have a history of subterfuge and deceit. It is believed they will cross the border and assume an antagonistic stance to provoke a war. Worf’s Captain, Jean Luc Picard, is seeking any means that would avoid an armed encounter, and decides to plead with Worf to reconsider his decision.

In this moment, it would be expedient to Picard and his crew to order Worf to donate his blood. He is about to contend with an adversary whom has no issue with breaking a peace treaty by provoking an attack (whether or not his side is initially in the wrong). Picard is seeking to recover a still-stranded crew member on the planet below, keep his ship safe, maintain the territorial sovereignty of the Federation, and maintain tenuous diplomatic relations with a rival group. This is all threatened because the one solution to his problem, keeping the enemy officer alive, is being blocked by a crew member whose personal history and honour motivate him to not help the enemy.

There is a beautiful scene where Picard appeals to Worf for him to reconsider:

Picard: So, there is no question that the Romulan officer is more valuable to us alive than dead.
Worf: I understand.
Picard: Lieutenant, sometimes the moral obligations of command are less than clear. I have to weigh the good of the many against the needs of the individual and try to balance them as realistically as possible. God knows, I don’t always succeed.
Worf: I have not had cause to complain, Captain.
Picard: Oh, Lieutenant, you wouldn’t complain even if you had cause.
Worf: If you order me to agree to the transfusion, I will obey of course.
Picard: I don’t want to order you. But I ask you, I beg you, to volunteer.
Worf: I cannot.

In silence, Picard slowly walks back around his desk and sits in his chair.

Picard: Lieutenant.
Worf: Sir?
Picard: That will be all.

We then learn from the ship’s Chief Medical Officer that the Romulan has died. Picard has lost the only bargaining chip he had to keep things peaceful with the approaching enemy ship.

Picard could have chosen to order Worf to allow the blood transfusion. Instead, he chooses to respect his crew member’s personal wish, and as a leader deal with the hand he’s given. He also knows that making an order against the personal rights of a crew member under his command sets a dangerous precedence – that anyone is disposable if the captain judges it. Instead, he accepts that this closes off options. He knows that this places him not just on the back-foot, but also with his arms tied behind his back as he prepares for the possibility that his ship will be destroyed. However, the burden of command requires him to take these realities as they come and make the best decisions that he can. Events are being shaped around him that are beyond his control, but he strives to make the best decision that he can. He’s not perfect, but he becomes a role model in striving to do the right thing.

Even if the right thing might mean the death of he and his crew.

It’s a wonder piece of science fiction that I’m glad to be discovering anew.

Stay Awesome,

Ryan

Friday Round-Up – May 8, 2020

Note – this is an experimental posting format. I’ve thought about increasing the number of posts I commit to per week, but I don’t want to add unnecessary work if I’m not willing to stick it out. Let’s be honest: sometimes it’s really hard to get a single post out each Monday that I’m satisfied with, so increasing my posting frequency just to for the sake of increasing my output is a terrible idea. I will run a short experiment to see how easy it is for me to get out a Friday Round-up for the next month. If the experiment goes well, I’ll consider making it a part of the regular rotation. You can find the first round-up post here from April 24th, and the second here from May 1st.

I was pretty happy with last week’s roundup, but I felt like sharing some less heavy, though no less important, links this week.

Here is my round-up list for the week ending on May 8th:

📖Article – Breaking deaf stereotypes and normalizing sign language through gaming – Anthony McGlynn | Ars Technica

This was such a cool story to read and is worth signal-boosting. An important lesson I’ve learned in my time reviewing community-based research ethics applications is that we should be sensitive to how stories get told. As a general rule, our default should be that communities of people are the authors of their own stories. That’s not to say that outsiders should never tell stories outside of their experience, but instead we should actively promote stories told by members of a community and we should be mindful of how characters get portrayed. Characters will often get saddled with stereotypes and short-hand signifiers in the pursuit of easily conveying information to an audience, which has the dangerous possibility of spreading misinformation or perpetuating harms to the community. Therefore, I’m happy to share this story about a game that is created by the deaf community and tells their story for others to learn from.

As I drafted today’s message, I was also reminded of Loud as a Whisper from Star Trek: The Next Generation’s second season. One of the guest stars was a deaf actor who also brought the story penned by his wife to the producers.

📽 Video – YOU’RE AN ALL STAR! – vlogbrothers

Until this vlogbrothers episode from John Green, I hadn’t heard about the weird world of Singamajigs. I share this not because of the weird toy, but because it’s a heartwarming story of how the vlogbrothers community of Nerd Fighters came together for John’s brother’s birthday to find a rare version of a Singamajig that sings Smash Mouth’s song, All Star. Not only did they manage to find one, but the community also sent in some fun projects that they attempted as gifts to Hank Green. With all the bleak news circulating around, this was a welcomed bit of frivolity and celebration.

📽 Video – Weird, or Just Different – Derek Sivers | TED

This video is super-super short, but packs a punch. It’s an important reminder that just because something is different from how we do things, it doesn’t mean it’s weird or wrong. That’s the beauty of different cultures – they provide us with new and exciting ways of seeing the world around us. It’s also a good reminder to check our own biases and received habits, because they are often just as arbitrary.

Stay Awesome,

Ryan

Second Order Brother’s Keeper

person behind mesh fence
Photo by Mitch Lensink on Unsplash

I apologize for the late post this week. I had a few ideas kicking around in my head, but given the updates, I felt this ramble-post was a better attempt to capture some of the zeitgeist, rather than my usual attempt to feign some sort of authority on whatever it is I’m trying to accomplish on this site. Maybe I’ll rant another time about the scummy people who are profiteering through the COVID-19 scare.

Most of the information circulating concerns how an individual can help protect themselves from contracting the virus. Obviously this information is spread around not to protect any one individual, but because it’s the government’s attempt to flatten the curve and ease the economic and public health downsides to the current behaviours of people, from clogging up emergency rooms with sniffles to wholesale runs on items in the grocery store.

I’m heartened by some of the genuinely positive messages being shared around, from people finding clever ways to spend time with loved ones in lockdown, to our Canadian Prime Minister ending his recent public address with a message of watching out for each other, to care for each other, and reinforce this as a Canadian value.

I’m not entirely sure what I should write about this week. It’s pretty hard to form a coherent thought when the majority of my bandwidth is occupied with keeping up with the shifting narrative around what’s going on. Thanks to technology, information (or misinformation) spreads quickly, and we are seeing multiple updates per day as a result. At my place of employment, they took the unprecedented step of shutting down face-to-face curriculum delivery. Unlike the faculty strike from Fall 2017, the College is working to keep the educational process running. While it may be that in the School of Engineering it can be impossible to replicate lab or shop time, the majority of faculty are working hard to translate their delivery to an online format.

So far, our employer has done a good job, in my opinion, with taking prudent steps to a.) keep people meaningfully occupied in their work so that no one has to lose their salary, and b.) do its part to stop the spread of the virus. I’m not saying that things couldn’t be better, but given the circumstances they’ve done a good job.

I’ve been thinking about the purpose of social isolation as a pandemic response. As I said above, the point is less about protecting oneself and is instead about protecting hospitals from being overwhelmed. If we’ve learned anything from countries around the world that are going through the worst right now, it’s that it becomes impossible to protect our vulnerable when there is a shortage of hospital beds. Hospitals are having to triage patients to focus on saving those who can be saved, who have the highest chances of recovering.

It is because of this that I’ve been thinking about the concept of a “brother’s keeper.” It’s not necessarily enough that governments or citizens remain mindful about the well-being of our vulnerable populations. Oftentimes while we are focusing on immediate dangers before us, we tend to not anticipate higher-order consequences of our policies or decisions.

Closing schools is great in theory – children are rabid spreaders of contagions, whether they are actually symptomatic or not, which means they infect their parents (some of whom are front line medical workers). But when we close schools, you have second order consequences that parents struggle with childcare, or children living in poverty lose access to food that is supplied at school.

When you close borders, you stop carriers of the virus from entry. But it also means that our international students (who are in some cases being vacated from post-secondary residences as school’s work to limit social contact among students) have no where to go. Airports are limiting international travel and the cost of purchasing tickets are skyrocketing. By them being in a foreign country, these students are vulnerable and caught in difficult positions on how to keep themselves safe.

By shutting down public spaces, you are helping to keep people from accidentally infecting each other. But when you close down businesses such as restaurants, you cut off people from the economic means they need to support themselves. Sure, the government is offering assistance to persons and businesses alike, but that will provide little comfort to people who can neither travel for groceries, nor pay for the supplies they need.

And let’s not forget what panic purchasing is doing to our supply chain – leaving store shelves cleared out of supplies, which means folks like the elderly are left without.

The hardest part I’m finding in all of this is the feeling of being powerless. You can’t control other people, and so you are forced to anticipate their moves to ensure you won’t be left without. But it’s this kind of thinking that leads to more drastic measures being taken. The virus also makes you feel powerless because you feel like an invisible stalker is coming for you – you don’t know who will be the final vector that leads to you. And you aren’t totally sure if our ritualistic hand-washing and hand-sanitizing is actually keeping us safe, or merely providing comfort. You can’t predict the future, and you can’t be sure you’re doing everything you can; you always feel like there is more you could be doing.

This reminds me of the story of the tinfoil house and pink dragons. A person covers their house in tinfoil, and when asked about it they say it keeps the pink dragons away. When asked if it works, the person shrugs and says “I don’t know, but I haven’t been attacked yet.” Of course, asking “if it works” is the wrong question here because there are no pink dragons. But as Taleb tells us in his book about Black Swans, there are always those highly unprobable events with massive downsides that we don’t see coming. Public policy and budgets are created to deal with clear and present dangers, and those policies and budgets are eroded when it’s felt that the money is not being allocated optimally. Therefore, you run into problems where you are never sure if the resources you spend to prevent something actually works – it’s really hard to prove causality in something that never happens.

Instead, we often are left to scramble to try and get ahead of trouble when we are already flat-footed, which means that our vision narrows as we focus on the fires in front of us that needs to be put out. Fighting fires is great (even heroic at times), but often the measures we take to deal with crisis have unanticipated second-order consequences that become difficult to deal with.

I’m not sure how to deal with this, but it makes me wonder about being my brother’s keeper, and what I can do to protect them.

Stay Awesome,

Ryan

A Modern Cartesian Demon

grey and brown concrete building close-up photography
Photo by Marius on Unsplash

During a throwaway thought experiment in his 1641 treatise, Meditations on First Philosophy in which the existence of God and the immortality of the soul are demonstrated, René Descartes posited the idea of an evil genius or demon that systematically deceives us to distort our understanding of the world. Contrary to first year philosophy students everywhere (a younger version of myself included), Descartes did not actually believe in the existence of an evil manipulator that was holding us back from understanding the nature of the real world. Instead, he was using it as part of a larger project to radically re-conceive epistemology in an era of rapid advancements in science that was threatening to overturn centuries of our understanding of the world. He felt that knowledge was built upon shaky ground thanks to an over-adherence on the received authorities from Greek antiquity and the Church’s use of Aristotelian scholasticism. Similar to Francis Bacon twenty years earlier, Descartes set out to focus on knowledge that stood independent of received authority.

Through Meditations one and two of his book, Descartes considers the sources of our beliefs and considers how we come to know what we think we know. He wants to find an unshakable truth to build all knowledge from, and through an exercise of radical doubt he calls into question many of the core facts we hold – first that knowledge gained from the senses are often in error, that we often can’t distinguish the real from fantasy, and through the use of the evil genius, that perhaps even our abstract knowledge like mathematics could be an illusion.

André Hatala [e.a.] (1997) De eeuw van Rembrandt, Bruxelles: Crédit communal de Belgique, ISBN 2-908388-32-4.

When I teach this to first year students, they either don’t take his concerns seriously because of the force of the impressions the real world gives us in providing sense data for knowledge (a stubbed toe in the dark seems to forcefully prove to us that the external world to our senses is very real), or they take Descartes too seriously and think Descartes really thought that a demon was actively deceiving him. Regardless of which side the student falls on, they will then conclude that Descartes’ concerns are not worth worrying about; that this mode of thinking is the product of an earlier, less sophisticated age.

Unless you are a scholar delving into Descartes’ work, the real purpose of teaching the Meditations is to provide students with a framework to understand how one can go about thinking through complex philosophical problems. Descartes starts from a position of epistemic doubt, and decided to run with it in a thought experiment to see where it took him. The thought experiment is a useful exercise to run your students through to get them to think through their received opinions and held-dogmas.

However, in light of my rant a few weeks back about informed consent and vaccines, I’ve discovered a new contemporary use for thinking about Descartes’ evil genius. In some sense, the evil genius is *real* and takes the form of fear that shortcuts our abilities to learn about the world and revise our held beliefs. Descartes posited that the evil demon was able to put ideas into our heads that made us believe things that were completely against logic. The demon was able to strip away the world beyond the senses and even cast doubt on abstract concepts like mathematics.

Much in the same way Descartes’ demon was able to “deceive” him into believing things that were contrary to the nature of reality, our fear of the unknown and of future harm can cause us to hold beliefs that do not map onto facts about the world. Worse yet, the story we tell about those facts can get warped, and new explanations can be given to account for what we are seeing. This becomes the breeding ground for conspiracy thinking, the backfire effect, and entrenched adherence to one’s beliefs. We hate to be wrong, and so we bend over backwards to contort our understanding of the facts to hold-fast to our worldview.

In truth, we are all susceptible to Descartes’ demon, especially those whom believe themselves to be above these kinds of faults of logic. In psychology, it’s called the Dunning-Kruger effect, of which there are all sorts of reasons given why people overestimate their competence. But in the context of an entrenched worldview that is susceptible to fear of the unknown lurks Descartes’ Demon, ready to pounce upon us with false beliefs about the world. Its call is strong, its grip is tight, and the demon is there to lull us into tribalism. We fight against those we see as merchants of un-truth and in a twisted sense of irony, the weapons of truth we yield only affect those already on our side, while those we seek to attack are left unaffected. It becomes a dog-whistle that calls on those who already think and believe as we do.

If we hope to combat this modern Cartesian demon, we’ll need to find a new way of reaching those we see on the other side.

Stay Awesome,

Ryan

Informed Consent and the Virus of Harmful Rhetoric

person injecting someone on his arm
Photo by Hyttalo Souza on Unsplash

In the ethics of conducting research with human participants, there is the concept of “informed consent.” At its foundation, informed consent is the process of communicating a sufficient amount of information about a research project to a prospective participant so that the prospect is able to decide whether they want to consent to being a participant in a study. There is a lot of nuance that can go into selecting what gets communicated because you have a lot of necessary information that needs be shared but you don’t want to share so much information that the participant is overwhelmed by the volume of information.

When I review research ethics applications, I am privy to a lot of information about the project. In the course of reviewing the project, I have to make judgement calls about what should be included in the informed consent letters that participants read. It would be counter-productive if the participant had to read all the documentation I am required to read when reviewing an application, so we use certain best practices and principles to decide what information gets communicated as a standard, and what is left in the application.

There is, of course, some challenges that we must confront in this process. As I said, when reviewing a research project, you have to balance the needs of the project with the needs of a participant. All research, by virtue of exploring the unknown, carries with it an element of risk. When you involve humans in a research project, you are asking them to shoulder some of the risk in the name of progress. Our job as researchers and reviewers is to anticpate risk and mitigate it where possible. We are stewards of the well-being of the participants, and we use our experience and expertise to protect the particpants.

This means that one challenge is communicating risk to participants and helping them understand the implications of the risks of the research. In many instances, the participants are well aware of risks posed to their normal, every-day lived experiences and how the research intersects with it. The patient living with a medical condition is aware of their pain or suffering, and can appreciate risks associated with medical interventions. A person living in poverty is acutely aware of what it means to live in poverty, and understands that discussing their experiences can be psychologically and emotionally difficult. Our jobs (as reviewers and researchers) is to ensure that the participant is made aware of the risk, mitigate it as much as we can without compromising the integrity of the research program, and to contextualize the risk so that the participant can make choices for themselves without coercion.

The concept of informed consent is hugely important, arguably the most important component of research projects involving humans as participants. It is an acknowledgement that people are ends in themselves, not a means to furthering knowledge or the researcher’s private or professional goals. Indeed, without a respect for the autonomy of the participant, research projects are likely to not be moved into action even when research funds are available.

All of this is a preamble to discuss the anger I felt when I read a recent CBC report on how anti-vaxxer advocates are using the concept of informed consent as a dog-whistle to their adherents, and are using informed consent as a way of both furthering their awareness and raising money with well-meaning politicians and the public.

In fairness, I can see the chain of reasoning at play that tries to connect informed consent with concerns about vaccines. For instance, in the article there is a photo of supporters of a vaccine choice group with a banner that reads “If there is a risk there must be a choice.” This sentiment is entirely consistent with the principles of informed consent. The problem with this application is that the risk is not being communicated and understood properly within context, and instead fear, misinformation, and conspiracies that lead to paternalistic paranoia are short-cutting the conversation. Further, the incentive structures that are borne out of the economics of our medical system are doing little to address these fears. Because so little money is flowing from the government to the medical system, doctors are forced to maximize the number of patients they see in a day just to ensure enough money is coming into the practice to pay for space, equipment, staff, insurance, and supplies. Rather than seeking quality face-to-face time with a patient, doctors have to make a choice to limit patient time to just focus on a chief complaint and address questions as efficiently as they can.

I don’t think it’s all the doctor’s fault either. I think we as patients, or more specifically we as a society, have a terrible grasp of medical and scientific literacy. I don’t have a strong opinion about what the root cause of this is, but some combination of underfunded schooling, rapid technological innovation, growing income disparities, entertainment pacification, a lack of mental health support, increasingly complex life systems, and precarious economic living in the average household are all influencing the poor grasp people have about what makes the world around us work. Rather than being the case that we are hyper-specialized in our worldviews, I think it’s the case that “life” is too complex for the average person to invest time into understanding. Let’s be clear, it is not the case that the average person isn’t smart enough to grasp it (even if sometimes my frustration with people leads me to this conclusion). Instead, I think that people are pulled in so many directions that they don’t have the time or economic freedom to deal with things that don’t immediately pay off for them. People are so fixated on just making it day-to-day and trying not to fall behind that it becomes a luxury to have the leisure time to devote to these kinds of activities.

What this results in, then, is the perfect storm of ignorance and fear that congeals into a tribal call to rebel against the paternalism of a system that is ironically also too cash-strapped to allow the flexibility to educate people on the nature of risk. People don’t have the time and ability to educate themselves, and doctors don’t have the time to share their experiences and knowledge with their patients.

Within this gap, opportunistic charlatans and sophists thrive to capitalize on people’s fears to push their own agendas. This is why bad actors like the disgraced former doctor Andrew Wakefield and movement leader Del Bigtree are able to charge fees to profit from speaking at anti-vaccination events. I’m not saying a person who spreads a message should do it for free. What I am saying is that they are able to turn a personal profit by preying on people’s fears while doing little to investigate the thing they claim to worry about.

We must find a way to communicate two simultaneous truths:

  1. There is an inherent risk in everything; bad stuff happens to good people, and you can do everything right and still lose. Nevertheless, the risks involved when it comes to vaccines are worth shouldering because of the net good that comes from it and the risks themselves are vanishingly small.
  2. In the 22 years since Wakefield published his study and the 16 years since its retraction, there has not been any peer-reviewed credible evidence that supports many of the claims given by the anti-vaxx movement. The movement is predicated on fears people have of the probability of something bad happening to them or their loved ones. The motivation behind the fear is legitimate, but the object of the fear is a bogeyman that hides behind whatever shadows it can find as more and more light is cast on this area.

The anti-vaxx ideology knows it cannot address head-on the mounting scientific evidence that discredits its premise, and so it instead focuses on a different avenue of attack.

This bears repeating: the anti-vaxx ideology cannot debate or refute the scientific evidence about vaccination. We know vaccines work. We know how they work; we know why they work. We understand the probabilities of the risk; we know the type and magnitudes of the risks. These things are known to us. Anti-vaxx belief is a deliberate falsehood when it denies any of what we know.

Because of this, the anti-vaxx ideology is shifting to speak to those deep fears we have of the unknown, and instead of dealing with the facts of medicine, it is sinking its claws into the deep desire we have for freedom and autonomy. It shortcuts our rational experience and appeals to the fears evolution has given us to grapples with the unknown – the knee-jerk rejection of things we don’t understand.

Informed consent as a concept is the latest victim of anti-vaxx’s contagion. It’s seeping in and corrupting it from the inside, turning the very principle of self-directed autonomy against a person’s self-interest. It doesn’t cast doubt by calling the science into question. Instead, it casts doubt precisely because the average person doesn’t understand the science, and so that unknown becomes scary to us and we reject or avoid what brings us fear.

Anti-vaxx ideology is a memetic virus. In our society’s wealth, luxury, and tech-enabled friction-free lives, we have allowed this dangerous idea to gain strength. By ignoring it and ridiculing it until now, we have come to a point where it threatens to disrupt social homeostasis. Unless we do something to change the conditions we find ourselves in – unless we are willing to do the hard work – I fear that this ideology is going to replicate at a rate that we can’t stop. It will reach a critical mass, infect enough people, and threaten to undo all the hard work achieved in the past. We have already seen the evidence of this as once-eradicated diseases are popping up in our communities. The immunity and innoculations have weakened. Let’s hope those walls don’t break.

Stay Awesome,

Ryan