Friday Round-up – July 3, 2020

As I noted in my post earlier this week, I missed my last Friday roundup post. This is my first effort in doing better.

Here is my round-up list for the week ending on June 26th July 3rd, 2020.

📽 Video: The Toxic World of Self Help: Hustle Culture, Toxic Positivity, Addiction, and Fake Gurus. | James Jani (YouTube)

I am guilty of buying into the world of self-help. The vast majority of my reading over the last five years has been variations on the self-help genre (to the point that I’ve coined the term animated bibliography to describe its form). I know that the returns on investing in self-help diminishes quickly, and I am aware of how dubious the promise that self-help sells is, but I constantly find myself getting sucked into it. This video doesn’t necessarily say anything new that I haven’t realized myself, but it pulls it together nicely with many examples of how dark this world can be for the copycat authorities that use the same tactics in different domains. This video is a good summary and reminder to myself the next time I’m sold the promise of a better life through tactics and strategies for sale.

Listen: A Recipe for Caesar | Common Sense Podcast by Dan Carlin AND Jon Stewart | Joe Rogan Experience Podcast

I covered a different interview with Jon Stewart in my last published Friday roundup, but I wanted to link these two different podcast episodes along a similar theme, despite the shows being wildly different. I noticed that both Dan Carlin and Jon Stewart remarked on the difficulty that comes with being a voice that people turn to when making sense of the world. Stewart noted that towards the end of his time on the Daily Show, he sometimes struggled to be the person to go on television and say something smart or comforting after a tragedy struck (it might have been part of the reason why he burned-out and needed to retire). Similarly, Dan Carlin has not put out an episode of his podcast Common Sense in a few years, but he released this episode earlier this year. In it, he notes that he’s tried recording an episode multiple times but felt he was adding nothing of substance to the conversation. He struggled to, like Stewart, be a voice for people (like me) who turn to him to help understand the world we find ourselves in. I listened to both of these episodes in the same week, and gained a new appreciation for those like Carlin and Stewart who make livings giving me monologues to pre-digest current events. It must be tough to strike a balance by being both insightful and non-inflammatory, where you avoid stoking the audience against “the other side” (whatever side that happens to be at the time). A YouTuber I follow recently commented on folks like Tim Poole whose sole purpose is to inflame the left/right hostility, rather than adding anything of substance to the discourse. It’s causing me to slowly evaluate what voices I allow in and whether they’ve earned their place in my attention.

Read: Why I’m Leaving Academia | Ozan Varol

I have some deeper reflections that this article prompted, but I wanted to capture this here first. Varol has been a law professor for 10 years now, and with the success of his recent book, he’s decided to move on from his teaching duties to pursue other endeavors. This reminds me of Nassim Taleb’s idea of via negativa. Varol specifically invokes this idea (though not by name) by reflecting that decisions he’s made in his life that had the greatest positive impact were often decisions that “subtracted” from his life. It’s a reflection I applied to my own circumstances and still need a bit more time to process.

Watch: Every Race in Middle-Earth Explained | WIRED (YouTube)

Because we all need to have some fun once in a while, here is an informative half-hour from a Tolkein scholar who covers the history of Middle-Earth through its inhabitants.

Stay Awesome,

Ryan

Friday Round-Up – June 19, 2020

After a poor performance last week left me with no Friday post, and even though today’s post is much later than I intended, here I am to make good on my promise to do better.

Here is my round-up list for the week ending on June 19th:

📖Article – Jon Stewart Is Back to Weigh In | The New York Times

Sorry if you hit a paywall on this article (I managed to read it fine from Pocket). I’ve lamented elsewhere that I genuinely miss Jon Stewart, not just from his tenure on the Daily Show, but also from other initiatives he’s thrown his weight behind (remember his masterclass in oration?). While this interview is part of Stewart’s media blitz for his upcoming movie release, it is also chocked-full of wonderful insights and observations about the world we find ourselves in. He’s ever poignant in his wit, but also speaks from a cautious place. The interview is so good, I quickly reached the limit of my free highlights in Pocket.

💭 Reflection Mega-Thread – How We Process Information

I want to turn this into a more formal blog post in the near future, but for now I’d like to lay out a few strands that have come together over the last two weeks about how we process, curate, and digest information.

🎧 Listen – You Must Avoid This Weakness | The Daily Stoic Podcast

First, a short listen from the Daily Stoic reflecting on how our minds are not reliable when it comes to processing truth. Instead, we are bound up in our own biases that we seek to confirm. If we want to be functioning, contributing members of society, we must actively exercise our critical faculties, including seeking out when we are wrong. Or as the closing lines state: “It’s the snowflakes who fly into a rage when someone challenges their views. It’s the snowflakes who can never admit they’re wrong or address deserved criticism or feedback.”

🎧 Listen – 479: Post-truth Expertise | CBC Spark Podcast

Next, a thought-provoking podcast episode from the CBC that tackles expertise in a seeming post-truth world. There is a lot of good information floating around in the ether, waiting for us to latch on to its wisdom. And yet, despite good information there for us to seize, we see many people in our peer groups turn away and distrust the experts. Shunning the norms of knowledge communities, they instead embrace their own norms of knowledge and assertion.

📣 Twitter – Carl T. Bergstrom (@CT_Bergstrom)

Speaking of experts, one of the voices I’ve turned to on Twitter to help me filter the signal from the noise is Mr. Bergstrom. He has provided both some levity :

As well as valuable information to help stop me from embracing each news article that flies out with clickbait titles:

I have a blog post percolating in my mind about curating news feeds, but I’ll leave that breadcrumb here for now.

🏳‍🌈🎧 Listen – I Don’t Want To Get Over You (Season 3 Mission 9) | Zombies, Run!🏳‍🌈

Finally, I want to give a huge shout-out to the writers and folks behind Zombies, Run! for this episode I listened to last week. The episode really stuck out for me. A large portion of the dialogue involves two lesbian characters discussing a mutual love interest (the love interest is the current partner of one of the characters, and a former lover of the other character in the conversation). The conversation between the characters touches on topics like “gold stars” and the fears that bisexual partners may have, even in committed relationships. I’ve heard my own queer friends discuss these topics, and while it felt noteworthy that the development team included “voices” from a wide range of folks, it was awesome to hear conversations that weren’t centered on the heterosexual experience that’s often given as the default in media. It gives the game a sense of realness and depth, despite it being about living in a post-apocalyptic zombie wasteland. It’s also important, as we reflect on this Pride month, to think about the kinds of voices we engage with that represents life, and whether we are seeking out sources that look to bring more diversity to the table. I’m happy to be supporting the app and the team.

Stay Awesome,

Ryan

Reflection: T1J – On Riots

My Monday post this week is late. Instead of trying to cobble something together, I will share this video from T1J’s YouTube channel published last week. It gave me a lot to think about.

“Now these stories are very complex and nuanced, and American schools generally do a bad job of teaching Black history. But the point I’m making is, it’s not true that Martin Luther King Jr. did some peaceful protests and gave some speeches and then single-handedly changed everyone’s minds. The progress we’ve seen is due to the combined efforts of Black leaders and activists throughout history, some of whom disagreed on the best path forward, but all of whom contributed towards shaping the world and making the world a little better for people of color. Another thing people fail to realize is that Martin Luther King Jr. was very unpopular during his time. So, whether or not something is palatable to the white masses is not a good measure of whether it is the right thing to do.”

“On Riots” 7:24-8:07

Stay Awesome,

Ryan

Friday Round-up – May 29, 2020

This was a pretty bad week for me consuming content. Between some big stuff happening at work, and a general feeling of blah-ness, I don’t have a lot to share this week.

Here is a round-up list for the week ending on May 29th:

📽 Video – Comedy News: Is It Deep or Dumb? | Wisecrack

I think this video does a good job to interrogate my love of certain kinds of comedic news. I was a late-convert to Jon Stewart, and felt crushed when he announced his (much deserved) retirement. While I’ll admit I haven’t given Trevor Noah a fair shake, I pretty much stopped watching the Daily Show after the change-over. Similarly, I’ve watched other shows that riff on the format, whether on cable (such as Samantha Bee), subscription services (like Hasan Minhaj), or online content (I get John Oliver through YouTube). It’s not lost on me that all of the names listed above are Daily Show alumni. My consumption also includes shows that are inspired by the presentation format, like Some More News on YouTube. Still, it’s rare that I consistently follow any one show because I tend to find the material or subjects to be somewhat hollow. The only exceptions to this, as noted by Wisecrack, are Oliver’s and Minhaj’s shows, which I feel to be both smart and wise in the material they present. Rather than trying to punch for the sake of cracking jokes, their shows punch at topics that are meant to help people that aren’t in on the joke. That is, their shows aren’t just speaking to the in-crowd as a private way of mocking the out-group. This was a great video essay that made me think.

📽 Video/Reading Group – Hannah Ardent Reading Group on “The Origins of Totalitarianism” | YouTube & Hannah Ardent Centre for Politics and Humanities at Bard College

I purchased Hannah Ardent’s The Origins of Totalitarianism as a birthday present for myself a few years ago (I know, I’m weird). I still haven’t cracked into it as of writing, but last week I received an email update from my alma mater, and in it they discussed how one of the faculty members had recently returned from time spent doing research at the Hannah Ardent Centre for Politics and Humanities at Bard College. The email also described the regular reading group that occurs, and how it recently moved online to promote physical distancing. I checked out their YouTube page and found this series that I hope to carve out some time to follow along with. Origins is a pretty hefty book, and Ardent is a pretty powerful thinker, so I’m glad to have a resource to help me understand the nuances of her work better.

Stay Awesome,

Ryan

Leadership Lessons – Individual Rights vs Expediency

Star Trek: The Next Generation – Season 3 Episode 7 “The Enemy”

As with many other people right now, I have chosen to go back and re-watch favourite television shows. I decided that with Star Trek: Picard’s recent release, it would be a great time to go back to the beginning (of the modern era, anyway) and revisit Star Trek: The Next Generation. I had probably watched every episode in my teen years, but I had always watched it in syndication, so this is my first time going through the show in order.

Approaching the series in my 30’s has been a real treat. I have more life and cultural experience to draw upon as I watch these incredibly written episodes play out. I knew the show was amazing, but I never appreciated how well it engages with moral issues.

I want to highlight one excellent episode from the third season – episode 7, “The Enemy.” The characters provide us with a moral issue about autonomy, and a good lesson in leadership.

The story centres on the conflict that arises when the protagonists rescue an enemy officer from an out of bounds planet. The officer, from a race of people called Romulans, is gravely wounded and requires a blood transfusion. There is only one member of the crew whose blood could be usable, but that crew member, Worf, has a history with the enemy’s peoples – Worf’s parents had been killed during a Romulan attack when he was a child. Worf, still carrying his anger for their death all these years, refuses to give his blood.

Meanwhile, a Romulan ship is en route to recover the officer. There is a tenuous peace treaty that prevents an all out war, but the Romulans have a history of subterfuge and deceit. It is believed they will cross the border and assume an antagonistic stance to provoke a war. Worf’s Captain, Jean Luc Picard, is seeking any means that would avoid an armed encounter, and decides to plead with Worf to reconsider his decision.

In this moment, it would be expedient to Picard and his crew to order Worf to donate his blood. He is about to contend with an adversary whom has no issue with breaking a peace treaty by provoking an attack (whether or not his side is initially in the wrong). Picard is seeking to recover a still-stranded crew member on the planet below, keep his ship safe, maintain the territorial sovereignty of the Federation, and maintain tenuous diplomatic relations with a rival group. This is all threatened because the one solution to his problem, keeping the enemy officer alive, is being blocked by a crew member whose personal history and honour motivate him to not help the enemy.

There is a beautiful scene where Picard appeals to Worf for him to reconsider:

Picard: So, there is no question that the Romulan officer is more valuable to us alive than dead.
Worf: I understand.
Picard: Lieutenant, sometimes the moral obligations of command are less than clear. I have to weigh the good of the many against the needs of the individual and try to balance them as realistically as possible. God knows, I don’t always succeed.
Worf: I have not had cause to complain, Captain.
Picard: Oh, Lieutenant, you wouldn’t complain even if you had cause.
Worf: If you order me to agree to the transfusion, I will obey of course.
Picard: I don’t want to order you. But I ask you, I beg you, to volunteer.
Worf: I cannot.

In silence, Picard slowly walks back around his desk and sits in his chair.

Picard: Lieutenant.
Worf: Sir?
Picard: That will be all.

We then learn from the ship’s Chief Medical Officer that the Romulan has died. Picard has lost the only bargaining chip he had to keep things peaceful with the approaching enemy ship.

Picard could have chosen to order Worf to allow the blood transfusion. Instead, he chooses to respect his crew member’s personal wish, and as a leader deal with the hand he’s given. He also knows that making an order against the personal rights of a crew member under his command sets a dangerous precedence – that anyone is disposable if the captain judges it. Instead, he accepts that this closes off options. He knows that this places him not just on the back-foot, but also with his arms tied behind his back as he prepares for the possibility that his ship will be destroyed. However, the burden of command requires him to take these realities as they come and make the best decisions that he can. Events are being shaped around him that are beyond his control, but he strives to make the best decision that he can. He’s not perfect, but he becomes a role model in striving to do the right thing.

Even if the right thing might mean the death of he and his crew.

It’s a wonder piece of science fiction that I’m glad to be discovering anew.

Stay Awesome,

Ryan

Friday Round-Up – May 22, 2020

Note – this is an experimental posting format. I’ve thought about increasing the number of posts I commit to per week, but I don’t want to add unnecessary work if I’m not willing to stick it out. Let’s be honest: sometimes it’s really hard to get a single post out each Monday that I’m satisfied with, so increasing my posting frequency just to for the sake of increasing my output is a terrible idea. I will run a short experiment to see how easy it is for me to get out a Friday Round-up for the next month. If the experiment goes well, I’ll consider making it a part of the regular rotation. You can find the first round-up post here from April 24ththe second on May 1st, the third here from May 8th, and last week’s on May 15th.

I’m enjoying this posting format so far, so I’ll continue for a few more weeks before making a decision whether it’ll stick around. This week, I stumbled across a lot of heartwarming videos and some cool, creative content.

Here is my round-up list for the week ending on May 22nd:

📷 Photography – This Joker Photo Was Shot with a Toy Figure and Household Items | Peta Pixel/Arjun Menon

View this post on Instagram

FREE FALL. This image is shot with action figures and household items only. . . I was listen to this song by 'Gorillaz: plastic beach' when this idea popped into my head. Joker falling down a sky scraper and yet showing no signs of fear or remorse! Afterall being a sociopath come with their own ups and downs. BTS (swipe for video): For this image I wanted to show a realistic city scape, something that wouldn't be too distracting. Realistic sets make bigger problems I realised. I began by choosing my skyscraper, needed a long grill that looked symmetrical and could pass light. Tada, found my rooms AC cover as the perfect candidate. I used it's filters and the other two surrounding buildings. Found a few more things like Keyboards, Bluetooth speakers, dumbbells as buildings. Then made a road map with rice lights. Added candle leds as building lights. Loved the way this shot came to life with practical effects! For the video my freind @shahidgire helped me out, thanks so much man, he's a kick-ass artist. Follow him! As always a lot of the effort and feedback from @hungryalisha and @sibyeduthafoto. Hey @joaquinlphoenix @hamillhimself @willsmith Hope you enjoyed this, a lot of effort goes into making these. Guys sharing goes a long way as support 🙂 . @hbo @hbomax . #actionfigures #joker @behindthescenegram #toyartphotography #toyartgallery #articulatedcomicbookart #acba #epictoyart @french_toy_love @epictoyart #toy #toyunion #endoskeleton @onlyfilmmaker #diyphotoshoot  #kaiexposeyourself #articulatedphotography #createathome @cinematogr #filmmakersworld @filmlights  #creativequarantine  #marvelactionfigures #op_h #batmanjoker #toysyndicate #dccomicsart  #breakfromboredom #toyaremydrug  #batmanart  #quarantineproject #dccomics @camera_setups

A post shared by ARJUN MENON (@artleavesamark) on

I stumbled across Arjun Menon’s work through a post on Peta Pixel, however I really encourage you to check out his Instagram page. Once you get past his recent project of filming figurines, you’ll also find many incredible photos from his portfolio. But his figurine photos are super creative and inspiring!

📽 (Wholesome) Video – broxh_| YouTube & Twitch

The link above takes you to broxh_’s Twitch page, but I learned about this sweet and wholesome dude on a compilation video elsewhere on the interwebs. Check out how awesome this guy is!

GAH! I just can’t get enough of how genuine and good he is. He’s so friendly and just wants to share his craft with people. I would gladly travel to New Zealand just to meet him in person.

📽 How To Videos – Dad, how do I? and Mom, how do I? | YouTube

The “Dad, how do I?” YouTube channel has blown-up recently, and I stumbled across a “Mom, how do I?” companion channel that was likely inspired by the Dad channel. The apparent story behind the Dad channel is the host, Rob, wanted to create videos to impart his wisdom now that his kids have grown. Rob’s father walked out on his family when he was in his early teens, so these videos also serve to help kids who were like him who don’t have someone they can turn to for how-to help. Like broxh_ above, the Dad and Mom channels show us that there are wonderful people out there who are spreading kindness in small, meaningful ways.

💭 Reflection – On Experimentation and the Unknown | Think Like a Rocket Scientist by Ozan Varol

This was an interesting observation that I stumbled across while reading Varol’s new book. While there are pedagogical reasons why we do experiments with known outcomes, I think sometimes we forget that the point of experiments is to test hypotheses because we don’t know the outcome with certainty. This pairs nicely with a quote Varol includes a few pages later from Richard Feynman: “Scientific knowledge is a body of statements of varying degrees of certainty – some most unsure, some nearly sure, none absolutely certain.” We tend to demand fixed answers from our experts and media, when instead we should be reminded repeatedly and often that our understanding of the universe is based on probabilities and not binary truth-conditions.

Stay Awesome,

Ryan

Friday Round-Up – May 8, 2020

Note – this is an experimental posting format. I’ve thought about increasing the number of posts I commit to per week, but I don’t want to add unnecessary work if I’m not willing to stick it out. Let’s be honest: sometimes it’s really hard to get a single post out each Monday that I’m satisfied with, so increasing my posting frequency just to for the sake of increasing my output is a terrible idea. I will run a short experiment to see how easy it is for me to get out a Friday Round-up for the next month. If the experiment goes well, I’ll consider making it a part of the regular rotation. You can find the first round-up post here from April 24th, and the second here from May 1st.

I was pretty happy with last week’s roundup, but I felt like sharing some less heavy, though no less important, links this week.

Here is my round-up list for the week ending on May 8th:

📖Article – Breaking deaf stereotypes and normalizing sign language through gaming – Anthony McGlynn | Ars Technica

This was such a cool story to read and is worth signal-boosting. An important lesson I’ve learned in my time reviewing community-based research ethics applications is that we should be sensitive to how stories get told. As a general rule, our default should be that communities of people are the authors of their own stories. That’s not to say that outsiders should never tell stories outside of their experience, but instead we should actively promote stories told by members of a community and we should be mindful of how characters get portrayed. Characters will often get saddled with stereotypes and short-hand signifiers in the pursuit of easily conveying information to an audience, which has the dangerous possibility of spreading misinformation or perpetuating harms to the community. Therefore, I’m happy to share this story about a game that is created by the deaf community and tells their story for others to learn from.

As I drafted today’s message, I was also reminded of Loud as a Whisper from Star Trek: The Next Generation’s second season. One of the guest stars was a deaf actor who also brought the story penned by his wife to the producers.

📽 Video – YOU’RE AN ALL STAR! – vlogbrothers

Until this vlogbrothers episode from John Green, I hadn’t heard about the weird world of Singamajigs. I share this not because of the weird toy, but because it’s a heartwarming story of how the vlogbrothers community of Nerd Fighters came together for John’s brother’s birthday to find a rare version of a Singamajig that sings Smash Mouth’s song, All Star. Not only did they manage to find one, but the community also sent in some fun projects that they attempted as gifts to Hank Green. With all the bleak news circulating around, this was a welcomed bit of frivolity and celebration.

📽 Video – Weird, or Just Different – Derek Sivers | TED

This video is super-super short, but packs a punch. It’s an important reminder that just because something is different from how we do things, it doesn’t mean it’s weird or wrong. That’s the beauty of different cultures – they provide us with new and exciting ways of seeing the world around us. It’s also a good reminder to check our own biases and received habits, because they are often just as arbitrary.

Stay Awesome,

Ryan

Appealing to my Smarmy Brain

selective focus photography of spiderweb
Photo by Nicolas Picard on Unsplash

From time to time, I catch myself thinking some pretty stupid stuff for entirely dumb reasons. A piece of information finds a way to bypass any critical thinking faculties I proudly think I possess and worms its way into my belief web. Almost like a virus, which is a great segue.

A perfect example of this happened last week in relation to the COVID-19 news, and I thought it important to share here, both as an exercise in humility to remind myself that I should not think myself above falling for false information, and as my contribution to correcting misinformation floating around the web.

Through a friend’s Stories on Instagram, I saw the following screencap from Twitter:

My immediate thought was to nod my head in approval and take some smug satisfaction that of course I’m smart enough to already know this is true.

Thankfully, some small part at the back of my brain immediately raised a red flag and called for a timeout to review the facts. I’m so glad that unconscious part was there.

It said to me “Hang on… is hand-sanitizer ‘anti-bacterial’?

I mean, yes, technically it is. But is it “anti-bacterial” in the same way that it is getting implied in this tweet? The way the information is framed, it treats the hand-sanitizer’s anti-bacterial properties as being exclusively what it was designed for, like antibiotics. For example, you can’t take antibiotics for the cold or flu, because those are not bacterial infections but viral infections.

Rather than leaving this belief untested, I jumped on ye ol’ Googles to find out more. I found a write-up in the National Center for Biotechnology Information discussing alcohol sanitizers.

According to the author on the topic of alcohol-based hand sanitizers (ABHS),

A study published in 2017 in the Journal of Infectious Diseases evaluated the virucidal activity of ABHS against re-emerging viral pathogens, such as Ebola virus, Zika virus (ZIKV), severe acute respiratory syndrome coronavirus (SARS-CoV), and Middle East respiratory syndrome coronavirus (MERS-CoV) and determined that they and other enveloped viruses could be efficiently inactivated by both WHO formulations I and II (ethanol-based and isopropanol-based respectively). This further supports the use of ABHS in healthcare systems and viral outbreak situations.

There are some special cases where ABHS are not effective against some kinds of non-enveloped viruses (e.g. norovirus), but for the purposes of what is happening around the world, ABHS are effective. It is also the case that the main precaution to protect yourself is to thoroughly wash your hands with soap and water, and follow other safety precautions as prescribed.

The tweet, while right about the need for us to wash our hands and not overly rely on hand-sanitizers, is factually wrong generally. Thanks to a mix of accurate information (bacteria =/= virus) and inaccurate information(“hand sanitizer is not anti-bacterial”), and a packaging that appeals to my “I’m smarter than you” personality, I nearly fell for its memetic misinformation.

There are a number of lessons I’ve taken from this experience:

  1. My network is not immune to false beliefs, so I must still guard against accepting information based on in-group status.
  2. Misinformation that closely resembles true facts will tap into my confirmation bias.
  3. I’m more likely to agree with statements that are coded with smarmy or condescending tonality because it carries greater transmission weight in online discourse.
  4. Appeals to authority (science) resonate with me – because this was coming from a scientist who is tired of misinformation (I, too, am tired of misinformation), I’m more likely to agree with something that sounds like something I believe.
  5. Just because someone says they are a scientist, doesn’t make the status true, nor does it mean what they are saying is automatically right.
  6. Even if the person is factually a scientist, if they are speaking outside of their primary domain, being a scientist does not confer special epistemological status.
  7. In the aftermath, the tweet was pulled and the person tried to correct the misinformation, but the incident highlights that the norms of Twitter (and social media more broadly) are entirely antithetical to nuance and contextual understanding.

It’s interesting how much information spread (memetics) resembles pathogen spreading. If the harmful thing attacking us is sufficiently designed to sidestep our defenses, whether that’s our body’s immune system or our critical thinking faculties, the invading thing can easily integrate within, establish itself within our web, and prepare to spread.

The one thing that really bums me out about this event is the inadvertent harm that comes to scientific authority. We as a society are caught in a period of intense distrust of the establishment that is coinciding with the largest explosion of information our species has ever seen. The result of this is not that good information is scarce, but rather the signal-to-noise ratio is so imbalanced that good information is getting swept away in the tide. If people grow distrustful of the sources of information that will help protect us, then forget worrying about gatekeepers that keep knowledge hidden; there will be no one left to listen.

Stay Awesome,

Ryan

Informed Consent and the Virus of Harmful Rhetoric

person injecting someone on his arm
Photo by Hyttalo Souza on Unsplash

In the ethics of conducting research with human participants, there is the concept of “informed consent.” At its foundation, informed consent is the process of communicating a sufficient amount of information about a research project to a prospective participant so that the prospect is able to decide whether they want to consent to being a participant in a study. There is a lot of nuance that can go into selecting what gets communicated because you have a lot of necessary information that needs be shared but you don’t want to share so much information that the participant is overwhelmed by the volume of information.

When I review research ethics applications, I am privy to a lot of information about the project. In the course of reviewing the project, I have to make judgement calls about what should be included in the informed consent letters that participants read. It would be counter-productive if the participant had to read all the documentation I am required to read when reviewing an application, so we use certain best practices and principles to decide what information gets communicated as a standard, and what is left in the application.

There is, of course, some challenges that we must confront in this process. As I said, when reviewing a research project, you have to balance the needs of the project with the needs of a participant. All research, by virtue of exploring the unknown, carries with it an element of risk. When you involve humans in a research project, you are asking them to shoulder some of the risk in the name of progress. Our job as researchers and reviewers is to anticpate risk and mitigate it where possible. We are stewards of the well-being of the participants, and we use our experience and expertise to protect the particpants.

This means that one challenge is communicating risk to participants and helping them understand the implications of the risks of the research. In many instances, the participants are well aware of risks posed to their normal, every-day lived experiences and how the research intersects with it. The patient living with a medical condition is aware of their pain or suffering, and can appreciate risks associated with medical interventions. A person living in poverty is acutely aware of what it means to live in poverty, and understands that discussing their experiences can be psychologically and emotionally difficult. Our jobs (as reviewers and researchers) is to ensure that the participant is made aware of the risk, mitigate it as much as we can without compromising the integrity of the research program, and to contextualize the risk so that the participant can make choices for themselves without coercion.

The concept of informed consent is hugely important, arguably the most important component of research projects involving humans as participants. It is an acknowledgement that people are ends in themselves, not a means to furthering knowledge or the researcher’s private or professional goals. Indeed, without a respect for the autonomy of the participant, research projects are likely to not be moved into action even when research funds are available.

All of this is a preamble to discuss the anger I felt when I read a recent CBC report on how anti-vaxxer advocates are using the concept of informed consent as a dog-whistle to their adherents, and are using informed consent as a way of both furthering their awareness and raising money with well-meaning politicians and the public.

In fairness, I can see the chain of reasoning at play that tries to connect informed consent with concerns about vaccines. For instance, in the article there is a photo of supporters of a vaccine choice group with a banner that reads “If there is a risk there must be a choice.” This sentiment is entirely consistent with the principles of informed consent. The problem with this application is that the risk is not being communicated and understood properly within context, and instead fear, misinformation, and conspiracies that lead to paternalistic paranoia are short-cutting the conversation. Further, the incentive structures that are borne out of the economics of our medical system are doing little to address these fears. Because so little money is flowing from the government to the medical system, doctors are forced to maximize the number of patients they see in a day just to ensure enough money is coming into the practice to pay for space, equipment, staff, insurance, and supplies. Rather than seeking quality face-to-face time with a patient, doctors have to make a choice to limit patient time to just focus on a chief complaint and address questions as efficiently as they can.

I don’t think it’s all the doctor’s fault either. I think we as patients, or more specifically we as a society, have a terrible grasp of medical and scientific literacy. I don’t have a strong opinion about what the root cause of this is, but some combination of underfunded schooling, rapid technological innovation, growing income disparities, entertainment pacification, a lack of mental health support, increasingly complex life systems, and precarious economic living in the average household are all influencing the poor grasp people have about what makes the world around us work. Rather than being the case that we are hyper-specialized in our worldviews, I think it’s the case that “life” is too complex for the average person to invest time into understanding. Let’s be clear, it is not the case that the average person isn’t smart enough to grasp it (even if sometimes my frustration with people leads me to this conclusion). Instead, I think that people are pulled in so many directions that they don’t have the time or economic freedom to deal with things that don’t immediately pay off for them. People are so fixated on just making it day-to-day and trying not to fall behind that it becomes a luxury to have the leisure time to devote to these kinds of activities.

What this results in, then, is the perfect storm of ignorance and fear that congeals into a tribal call to rebel against the paternalism of a system that is ironically also too cash-strapped to allow the flexibility to educate people on the nature of risk. People don’t have the time and ability to educate themselves, and doctors don’t have the time to share their experiences and knowledge with their patients.

Within this gap, opportunistic charlatans and sophists thrive to capitalize on people’s fears to push their own agendas. This is why bad actors like the disgraced former doctor Andrew Wakefield and movement leader Del Bigtree are able to charge fees to profit from speaking at anti-vaccination events. I’m not saying a person who spreads a message should do it for free. What I am saying is that they are able to turn a personal profit by preying on people’s fears while doing little to investigate the thing they claim to worry about.

We must find a way to communicate two simultaneous truths:

  1. There is an inherent risk in everything; bad stuff happens to good people, and you can do everything right and still lose. Nevertheless, the risks involved when it comes to vaccines are worth shouldering because of the net good that comes from it and the risks themselves are vanishingly small.
  2. In the 22 years since Wakefield published his study and the 16 years since its retraction, there has not been any peer-reviewed credible evidence that supports many of the claims given by the anti-vaxx movement. The movement is predicated on fears people have of the probability of something bad happening to them or their loved ones. The motivation behind the fear is legitimate, but the object of the fear is a bogeyman that hides behind whatever shadows it can find as more and more light is cast on this area.

The anti-vaxx ideology knows it cannot address head-on the mounting scientific evidence that discredits its premise, and so it instead focuses on a different avenue of attack.

This bears repeating: the anti-vaxx ideology cannot debate or refute the scientific evidence about vaccination. We know vaccines work. We know how they work; we know why they work. We understand the probabilities of the risk; we know the type and magnitudes of the risks. These things are known to us. Anti-vaxx belief is a deliberate falsehood when it denies any of what we know.

Because of this, the anti-vaxx ideology is shifting to speak to those deep fears we have of the unknown, and instead of dealing with the facts of medicine, it is sinking its claws into the deep desire we have for freedom and autonomy. It shortcuts our rational experience and appeals to the fears evolution has given us to grapples with the unknown – the knee-jerk rejection of things we don’t understand.

Informed consent as a concept is the latest victim of anti-vaxx’s contagion. It’s seeping in and corrupting it from the inside, turning the very principle of self-directed autonomy against a person’s self-interest. It doesn’t cast doubt by calling the science into question. Instead, it casts doubt precisely because the average person doesn’t understand the science, and so that unknown becomes scary to us and we reject or avoid what brings us fear.

Anti-vaxx ideology is a memetic virus. In our society’s wealth, luxury, and tech-enabled friction-free lives, we have allowed this dangerous idea to gain strength. By ignoring it and ridiculing it until now, we have come to a point where it threatens to disrupt social homeostasis. Unless we do something to change the conditions we find ourselves in – unless we are willing to do the hard work – I fear that this ideology is going to replicate at a rate that we can’t stop. It will reach a critical mass, infect enough people, and threaten to undo all the hard work achieved in the past. We have already seen the evidence of this as once-eradicated diseases are popping up in our communities. The immunity and innoculations have weakened. Let’s hope those walls don’t break.

Stay Awesome,

Ryan